Next Steps and
Helpful Links
JUST DIAGNOSED
If you or someone you care about has just been diagnosed with PKD, you probably have a lot of questions! You may be feeling overwhelmed with all of the information and need some help figuring out what questions you should ask first. The PKD Foundation is here to help you learn about PKD and how to manage the disease while maintaining a high quality of life. We are here to help you get connected with others in the PKD community who can help support you and ensure that you do not face PKD alone. The more you know, the better you can take care of yourself or your loved one with PKD.
What is ADPKD?
Autosomal dominant polycystic kidney disease, ADPKD, is one of the most common, life-threatening genetic diseases. In ADPKD, fluid-filled cysts develop and enlarge in both kidneys, eventually leading to kidney failure.
Working with your Doctor
In addition to your general practitioner (also called an internist), you should also see a doctor who specializes in kidneys. A nephrologist (kidney specialist) will be able to advise you best on how to care for your polycystic kidneys and the other related symptoms.
Get Connected
Whether it is walking annually at one of our 50 local Walk for PKD events, advocating on a local or national level, or participating in chapter activities to fundraise for PKD research, there are many ways to get involved at home, and online.
What is ARPKD?
Autosomal recessive polycystic kidney disease, ARPKD, is a rare genetic disorder occurring in approximately 1 in 20,000 children.