Registry Update

Registry Update

  Sign up Sign in Why join? What to expect Research findings FAQs What is ADPKD Registry? The ADPKD Registry is a collection of individuals with autosomal dominant polycystic kidney disease (ADPKD). Participants…Answer survey questions Answer questions about...
Patsy Parkin

Patsy Parkin

My sons, Donald, David, and Daniel were born on June 21, 1978. They’re perhaps the largest triplets born in the U.S. (a total of 22 lbs., 22 oz., or 23 lbs., 6 oz)—larger than the current record holders in the Guinness Book of Records. Their grandfather, Loyal Parkin,...
Jeannie Brown

Jeannie Brown

I am Jeannie Brown and I was diagnosed at 21 with PKD. There are six generations on my maternal side who’ve had or currently have this disease. I grew up educated in what PKD was and what the future may hold for me. I always felt lucky that I knew so much and at the...
Greg Schulmeister

Greg Schulmeister

It’s been a year since my kidney transplant— and wow, what a difference a year can make. It’s nice being able to enjoy life again, even the little things are enjoyable. Before my transplant, I had pain every day and wondered if I was going to be able to do...
Rachel Hurford

Rachel Hurford

My name is Rachel Hurford and PKD has affected my family for as long as I can remember. My grandad had PKD, and though my grandma donated her kidney to him, he still suffered complications after the donation and sadly passed away. My dad was also diagnosed with PKD....