Samuel SpencerI was 12 when I was diagnosed with PKD. It turns out my genes mutated, so I’m the only one in my family with the disease. Today, I’m 28. I didn’t really think much about the disease until this year when I started taking tolvaptan. Now that I’m married with a one-year-old at home, I think about it a lot more. I think about how I want to walk my little girl down the aisle one day.

I know we’re all given one life, and I sometimes feel down about how mine will be more challenging or shorter than other’s. But how can I compare? I’ve been given so much! These are the things I think about. I’m grateful others out there are sharing and studying how to #endPKD. Press on!