I’m 25 years old and I was diagnosed with PKD in March 2024. PKD runs in my family: my grandfather passed away from it, my dad has it, and most of my paternal aunts have it as well. The week of my diagnosis I was severely depressed and scared since I’ve watched family members pass away from PKD. Finding other members of the PKD community and connecting with them made me feel less anxious and lonely.
Two weeks after my diagnosis, I changed my diet and my lifestyle. It makes me feel better knowing I’m doing everything I can for a slower progression. The PKD Foundation has helped me find resources and a community of people who understand what I’m going through. My heart goes out to everyone living with PKD like myself. The journey isn’t easy, and I hope we soon find a cure.