Lainie E.I represent the third generation of ADPKD in my family—I was diagnosed in my early 20s. Those in my family who are no longer with us, passed away due to complications of the disease, but my father received the first transplant in our family four years ago. He’s doing well.

Although I’ve experienced recurring kidney infections and pregnancy complications, such as preeclampsia, I’m blessed to have good kidney function at this time. Despite the struggles and sadness this disease can bring, there’s so much to celebrate with the advocacy for organ transplantation and the success of tolvaptan. We’re grateful to the medical professionals in the research field who work tirelessly to bring these advancements to patients!