When I was 32 weeks pregnant with my first child, we found out he had cystic kidneys. We were told to expect the worst. If he lived through birth, he may not have fully developed lungs. He may need dialysis immediately. He may need a transplant in the first year.
Our son is now five, and although his disease impacts our daily lives, he’s thriving. He hasn’t needed dialysis and he was born with full lung development! A kidney transplant is definitely in his future, but we’re taking it one step at a time.
He was diagnosed with ARPKD; it’s never shown up in either my family or my husband’s.