Bennet RobinsonMy two-year old son, Bennett, was unexpectedly born with ARPKD. It’s been a long journey so far. NICU stay, surgery, meds, blood draws, blood pressure checks, and many doctor appointments. Despite everything he’s gone through and will continue to go through, this little guy continues inspiring those around him with his enthusiasm for life. I’m proud to be his mom and I hope to bring awareness to this devastating disease.