PKD YOUTH

Managing chronic illness can be difficult for anyone and especially difficult for teens and young adults. Parents have an important role in helping adolescents manage living with PKD and teens have an important role as well as they transition into managing their own care and learning to advocate for themselves.

Connecting with others that are dealing with some of the same issues is one way to help parents and teens cope with managing PKD.

As we work to enhance our resource library, we want to make sure that we include resources to assist parents as they navigate managing PKD with children approaching adolescence through young adulthood.

PKD Youth serves as a place for young adults and teens affected by PKD to share stories, make connections, ask questions and support each other.

Meet Paige Trishler

I was diagnosed with PKD in October 2015. I am the fifth generation affected by PKD in my family. My great-great-grandmother, great-grandmother, grandfather, great-uncle and my mom all have or had PKD. I am the youngest member of my family to be diagnosed with PKD [...]

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Living with Polycystic Kidney Disease

Five years ago, at age 13, I was diagnosed with polycystic kidney disease (PKD) after a series of visits to the emergency room with severe abdominal pain and vomiting [...]

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Living with Polycystic Kidney Disease

Five years ago, at age 13, I was diagnosed with polycystic kidney disease (PKD) after a series of visits to the emergency room with severe abdominal pain and vomiting [...]

Finish reading