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With PKD Connect, no one will ever face polycystic kidney disease alone. Because patients, family and loved ones will always be connected to others who understand firsthand what you’re going through. Whether you are looking for information, resources or just a shoulder to lean on, PKD Connect gives you the support to keep hope within reach.

PKD PARENTS

Polycystic kidney disease (PKD) is one of the most common chronic, life threatening genetic diseases. It affects an estimated 600,000 Americans and millions worldwide. PKD affects children as well as adults. Cystic kidney disease in children devastates families, and dramatically affects quality of life for children who have it.

CAREGIVERS

Caring for a loved one with PKD can be a stressful change. It is easy to feel overwhelmed and unable to cope. As a caregiver, you may experience extremely high levels of stress that can cause emotional and physical symptoms.

CAREGIVERS

Caring for a loved one with PKD can be a stressful change. It is easy to feel overwhelmed and unable to cope. As a caregiver, you may experience extremely high levels of stress that can cause emotional and physical symptoms.

PKD YOUTH

Parents have an important role in helping adolescents manage living with PKD and teens have an important role as well as they transition into managing their own care and learning to advocate for themselves.

PKD YOUTH

Parents have an important role in helping adolescents manage living with PKD and teens have an important role as well as they transition into managing their own care and learning to advocate for themselves.