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PKD HOPE Line

Do you have questions about PKD? Call the PKD HOPE line today.

Connect with our support team by dialing 800-PKD-HOPE (800-753-4673). Our team is available Monday through Friday from 8 a.m. - 5 p.m. Central time to answer your questions and direct you to resources that will address your concerns. If you call after hours, please leave us a message and we will get back to you as soon as possible. Whether you or a loved one have been recently diagnosed with PKD, or if you are looking for ongoing support PKD Connect staff is here to help.

Topics most frequently discussed:

· Understanding PKD
· Available treatment options
· Emotional support
· Online community connections
· Getting connected with a PKD Connect peer mentor
· Education webinars

Please be mindful that the PKD HOPE Line is an information and referral line and is not operated by clinical professionals. We do not provide medical services, diagnosis, treatment recommendations or laboratory test analysis. Our staff can only provide information based upon published materials that have been approved by the PKD Foundation’s Scientific Advisory Committee.

If you would prefer email, you can reach us anytime at pkdconnect@pkdcure.org.

Please be mindful that the PKD Connect Hope Line is an information and support line, and is not staffed by medical professionals The PKD Foundation does not offer medical advice. The information shared through our Hope line is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We strongly recommend that your care and treatment decisions be made in consultation with your healthcare professional team.