Rob Herman

Rob Herman

PKD runs in my my mom’s side of the family. It has been devastating to us. My grandfather died from a major stroke caused by PKD. My mom had a major stroke that left her a vegetable at age 35 from PKD. She died at 50. My older sister recently died from a major stroke...
Lisa Towler

Lisa Towler

This month marks 26 years ago I found out I had PKD. It was the second week of my senior year of high school. I’m adopted and several years ago I found some information about my mother’s family. A total of 5 members including myself have been diagnosed with PKD. I’m...
JoAnn Villanueva

JoAnn Villanueva

I write my PKD story on the 14th anniversary of my kidney transplant! I have two sisters, no brothers. I come from a LARGE Irish Catholic family (all raised in Chicago). Like other PKD families, many of my family members have been afflicted (five generations). My...