ADPKD Registry is a collection of individuals with autosomal dominant polycystic kidney disease (ADPKD). Research needs information. Joining the Registry gives patients the power to drive the next medical breakthrough.
From the PKD Foundation Blog
ADPKD Registry: Patient-Powered Research Tool
ADPKD Registry Patient Advisory Group: Meet the team
ADPKD Registry: learning in real time
ADPKD Registry: putting power in the patient’s hands
Participating in research — why PKD patient registries are important
Please contact us if you would like the PKD Foundation to help you recruit participants for a research study.